I have spoken a lot recently about the “Tell Me Why” campaign that Tommy’s have launched; a campaign to help fight for answers when a baby dies. However, for many people, there is a known reason – and tragically for a number of these families, this could have been prevented.
In her letter, Alison talks about her experience of losing her son Sebastian due to medical malpractice. Whilst the pain of loss is universal, realising that your child has died due to errors made by others is complex. There are many layers to unpick and understand, which can make grief all the more challenging. Alison, articulates this beautifully here and you can read more about Sebby on Instagram @thankyousebby
To the Mum who just found out her baby died due to medical malpractice,
This makes it both easier and harder.
There is a relief in hearing your son died because of another’s actions. That is OK. You don’t need to feel guilty about it. You feel that relief because it means your secret fear that you killed your child is not true.
It doesn’t mean that fear won’t still lurk in the background. It will tell you that you should have known they weren’t doing their jobs properly; it will tell you that you should have had a home birth; it will tell you that you should have gone into labour a day later and had a different medical team. But it does mean that when you cannot trust your own head and heart and the feeling that you are to blame is overwhelming that you can revert back to the medical report; you can revert back to the consultant with whom you had a debrief; you can revert back to the Coroner who all said that your son died because of them and not because of you. That will help you take a breath. Continue Reading
Time is so often revered as the healer of all things; ‘it takes time’; ‘all in good time’. Yet in life after loss it can be cruel and confusing. We wish for it to turn back so that we can in some way re-write history. We wish for it to stand still for fear that moving away from our loved ones will destroy the precious few memories we have. We wish for it to speed forwards, to a time when we may smile spontaneously and sing out loud again.
In this letter to Time, Jess @the_maeve_effect perfectly captures the complexity of our relationship with the one thing in life we cannot change.
Jess became both a mother and a bereaved mother in April 2013, when her first baby, Maeve died during an induced labour. She has since survived two further pregnancies, both fraught with worries, but worth every anxious second to bring Maeve’s siblings home. Since losing Maeve, Jess has found solace in writing, and healing in the power of finding words to capture her struggles with life after loss. She hopes that by sharing her grief journey, she might be able to offer some comfort to other grieving souls, as she has found such great support within the inspiring community of warrior parents. Jess lives in Ayrshire, Scotland, where life is a beautifully chaotic and complicated ride of parenting all three of her children. Continue Reading
I’m not sure where you even start with a post such as this; it’s hard to know whether there even is a beginning, and I certainly haven’t reached the end yet, so I guess it’s a case of starting from where I am now.
I have been experiencing postnatal depression.
If I’m honest, these are the most challenging, the most shaming and gut wrenching words I have written since Orla died. They are possibly more riddled with shame because I feel terrified of being judged, blamed and seen as selfish, weak and inferior. When your baby dies, you know that many people will feel sad for you. Of course, you fear that there will be a multitude of other thoughts and emotions, but overall, you know that people will feel sadness and regret. When it comes to mental health however, you can never be so sure.
And when this occurs in the context of parenting a rainbow, the fear of being viewed as ungrateful and unworthy is paralysing. Which in itself becomes a self-perpetuating cycle of self-loathing and inadequacy.
After Orla died, I became a ‘doer’. I got up every day, I showered, I cleaned the house – I even cooked (damn you Gusto for signing up a vulnerable heavily pregnant woman who thought she’d spend the first weeks of maternity leave cooking nutritious meals!). I made keepsakes to treasure memories of Orla, I wrote and set up a blog and we planned our fundraising trip to America. Three months after Orla died, we flew to Canada. Two weeks later I feel pregnant. We spent the first trimester of my pregnancy travelling down the East Coast of the US and then Canada, and when we returned to the UK three months later, I went back to work for five months. I did yoga, I completed a mindfulness course, I saw friends. I was coping so well. Continue Reading
Regret; the sense of sadness or repentance for having done or not done something.
I carry an overwhelming sense of regret in this life I live after loss, and it is something that can be a heavy burden to bear. After all, there is no going back, no changing what has been done or not done. Orla has gone, there is no way of getting her back and no way of making new memories with her physical presence in place of ones that we were not able to do. Death is final.
There are many things that I feel incredibly proud of, maybe more so in what we have undertaken since Orla died; her letters, the fundraising, the blog. Yet there are so many things that I wish I could have done differently. One of the biggest regrets will always be the overwhelming sense that I failed Orla and potentially could have saved her. This undoubtedly goes further than regret and fast tracks to heart crushing guilt and shame. This is not just a tinge of sadness or sorrow, this is full blown rage at myself that I can only sometimes allow myself to unleash, through fear of how it will consume me. This is mum guilt at its absolute extreme: the feeling that I could have, should have, saved her and in not doing so I am not fit to award myself the title of mother. Mothers protect their children and I somehow allowed mine to die. Continue Reading